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Microtia Awareness Day!

Today is National Microtia Awareness Day. Today is a day to spread awareness of the rare condition that Nolan was born with. In the first...

The Bad News & The Good News

This is when most people ask, "Do you want the good news or the bad news first?" -- I always choose the bad news so that I can end on a...

Speechless.

Speechless. That isn't a word that I usually use to describe myself, but that is the exact feeling that Joel and I have at this moment....

Share Your Story

When I first started this blog, the goal was to update friends and family with what was going on each week with Nolan. Quickly I started...

18 Days Away

Today I woke up and couldn’t stop staring at this little one. He is the happiest baby and loves to laugh. We are so lucky. ⁣⁣ Some...

What to go to the beach babe?

This past month we went on our first family vacation. Just the 3 of us. Joel and I have both dreamed about this day since before we got...

4 Months Old!

Happy Four Months Nolan! Time is still flying, you are still growing before our eyes, and we are continually falling more in love with...

Heart Surgery

I have gone to write this post four times now but keep getting distracted. If I am honest with you all and with myself the "distracted"...

Uneasy

That is the best word I can use to describe this waiting feeling. Tomorrow we go to Nolan's cardiologist for his second echocardiogram....

Exceptional Circumstances

nor·mal ˈnôrməl/adjective conforming to a standard; usual, typical, or expected."it's quite normal for puppies to bolt their...

The Story of Moore

When I first started this blog (only three months ago), the goal was to simply have a place to share Nolan's story with our friends and...

3 Months Old!

Two Month Appointment 25 inches long (81th percentile) 12 lb 10 oz (25th percentile) Dear Nolan, I think month 3 has been the quickest...

Hearing Tests & Hearing Aids

Sooo a baby in a hearing aid might be the cutest thing I have ever seen. All babies are given a standard hearing test when they are born....

Happy Two Month Birthday!

Two Month Appointment 23.5 inches long (75th percentile) 10 lb 12.5 oz (25th percentile) I am finally publishing this post almost a month...

Brain Food - Week 7

Gratitude. Something we have been showing much more of recently. Even in the hardest of days we still find things to be thankful for....

Round Two - Week 6

I keep telling people we feel like we are living in The Land of Opposites. The last 6 weeks have been the most joyous and the hardest...

Good News!

It was about damn time! Tuesday, June 19 Today we had two appointments. One was a weight check at our pediatrician, and the other was a...

Happy One Month Birthday!

One Month Appointment 21.75 inches long (50th percentile) 8 lb 0 oz (25th percentile) Dear Nolan, Your first month of life came and went....

One Step Forward, Two Steps Back

When you are living in the middle of unknowns it is hard to celebrate wins. Large or small, you are just waiting for something to go...

Genetics - Week 5

I have gone to write this post four times now. We had to do an x-ray series of Nolan's bones at CHOA. It was by far the hardest thing we...