It’s day 17 of CHD Awareness Month. Let’s talk about a cure. ⁣ ⁣ While there are treatments for most CHDs there is no cure, it’s a lifelong disease. Open hea...

Well, we got the brace. We have had it for 4 days and each day is getting a little bit easier, but this adjustment has been hard. Like really hard. ⁣ ⁣ 100% ...

It's been a hard week. Like really hard. One of the hardest in a while. We got some news we weren't expecting at Nolan's orthopedic appointment. It had been ...

If you have a second, please say a little prayer for this fighter tomorrow morning. He will be having a procedure to remove his skin tag (and one other minor...

Happy 1st Heart Anniversary to our warrior! I looked up why is the emotion of love so attached to the organ of the heart. If you have something that happens ...

Tomorrow is Microtia Awareness Day and we want to wish a Happy Microtia Day to Nolan and all the other Microtia babies, children, and adults.⁣ ⁣ What is Micr...

It’s hard to believe that a year ago we were preparing for Nolan’s open heart surgery (November 15 will be 1 year). It somehow feels like it was yesterday an...

September 12, 2018, was a day that changed our lives forever. While September 11 is a to remember, a day to never forget, a day to reflect on how far we have...

A year ago today, we walked into Sibley Heart Center (Nolan's pediatric Cardiologist group) for the first time. PRAYING that everything would be "normal." No...

Dear Nolan, 365 days ago. 525,600 minutes ago, we met you. You came into this world, and within a second you changed our lives forever. They took you away, a...

Nolan had a cardiologist appointment today and his heart function has increased so much the doctor is SHOCKED (Like they can't believe how much it was improv...

Last week the editor of the Forsyth County News Paper came across our Baby Shusher fundraiser and reached out to do a story on us. On Thursday, a photographe...

WOW! What a year it has been. From countless doctors appointments to open heart surgery and heart failure, our little warrior has been through so much in a s...

111. 111 days. 111 days is how many days apart these pictures were taken. ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀ I took the picture on the left 111 days ago (that was 3 da...

I have started writing blog posts for Nolan's surgery a handful of times now. They are hard to write. Each time I start to think about the days of surgery, t...

This is Nolan. He has Congenital Heart Disease and Microtia. He is 8 months. He is in the 25th percentile for weight and the 80th percentile for height. ⠀⠀⠀⠀...

On Friday Nolan had his first physical therapy evaluation. This is an appointment I was equally as nervous about as excited. I was excited for him to get hel...

2018 has been the greatest and hardest year of my life. I learned you can feel 2 emotions at the same time — Happiness and sadness. Calm and chaos. Worry and...

The is 24 hours worth of medication for Nolan. Before surgery there were only half of those syringes. ⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀ Post surgery Nolan’s heart fu...

Before reading this post you need to head over to the Post Surgery Update post. This morning we heard from Nolan's cardiologist. We will be heading to CHOA o...