Last week the editor of the Forsyth County News Paper came across our Baby Shusher fundraiser and reached out to do a story on us. On...

WOW! What a year it has been. From countless doctors appointments to open heart surgery and heart failure, our little warrior has been...

111. 111 days. 111 days is how many days apart these pictures were taken. ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀ I took the picture on the left 111...

I have started writing blog posts for Nolan's surgery a handful of times now. They are hard to write. Each time I start to think about...

This is Nolan. He has Congenital Heart Disease and Microtia. He is 8 months. He is in the 25th percentile for weight and the 80th...

On Friday Nolan had his first physical therapy evaluation. This is an appointment I was equally as nervous about as excited. I was...

2018 has been the greatest and hardest year of my life. I learned you can feel 2 emotions at the same time — Happiness and sadness. Calm...

The is 24 hours worth of medication for Nolan. Before surgery there were only half of those syringes. ⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀ Post...

Before reading this post you need to head over to the Post Surgery Update post. This morning we heard from Nolan's cardiologist. We will...

Cardiologist Appointment 12/11 We did not get the news we were hoping and praying for. Nolan’s heart function is still low and not where...

Three weeks ago today I handed my child over to surgeons I’d only met once. A nurse walked him down the hall away from us to start the...

Two weeks. 14 days. I can’t believe you are already two whole weeks out of surgery. The lead up to surgery was so slow but time is flying...

Today we went to the cardiologist for Nolan’s first follow up appointment. It was not the news we wanted but he is still early in...

What am I thankful for? This. This child. This scar. And all that this photo represents. These photos were taken 8 days apart. He looks...

Today is the day. Please pray for strength for Nolan, calm for us, and the skill of his medical team. Thank you all for your support. ♥️...

6 months! Wow! Where has the time gone? Nolan you are the happiest baby I have ever seen and bring us more joy than I ever thought...

It can be disappointing when your expectations don't align with reality. We have all been there before and know that letdown feeling when...

You can watch the video here - https://www.instagram.com/p/Bp-6nX5h_U5/ I have always been hesitant to post a video of Nolan eating. My...