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Half a year!

Updated: Dec 13, 2018



6 months! Wow! Where has the time gone?


Nolan you are the happiest baby I have ever seen and bring us more joy than I ever thought possible.


There are few days that I remember in vivid detail. The day you born was one of those days and today will be another.


We are currently sitting a pre-op room at CHOA as we prep for your surgery tomorrow. I know that soon we look back on this day and realize it was the start to your new life.


While you will be the same happy baby, after tomorrow you will have relief.


You will have a normal heart rate and no longer will feel like you are running 24/7.


You will have energy to be able yo grown and move just like other babies your age.


You will finally be hungry and be able to take a bottle without being exhausted from 3 sips.


I wish I could take your place tomorrow, but know you are in the most capable hands.


We love you more than we ever thought possible.


Xoxo - Mom & Dad

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