WOW! What a year it has been. From countless doctors appointments to open heart surgery and heart failure, our little warrior has been through so much in a short time! To honor Nolan for his first birthday (May 14) we have teamed up with Baby Shusher to help soothe other cardiac babies to sleep. It is simply a toy that says "SHHHHHhhhhh..... SHHHHHhhhhh". It is so soothing to babies!! We love Baby Shusher and it was a staple in Nolan's recovery! We took it to the hospital wit

2019 - Here we come!

2018 has been the greatest and hardest year of my life. I learned you can feel 2 emotions at the same time — Happiness and sadness. Calm and chaos. Worry and content. Certainty and uncertainty. Peace and question. And sometimes you feel them all at once. ⠀⠀⠀⠀⠀⠀ I learned being vulnerable doesn’t have to mean feeling helpless but feeling empowered. The more you put yourself out there, the more you open yourself to possibilities, ideas, and communities you didn’t even know exis


The is 24 hours worth of medication for Nolan. Before surgery there were only half of those syringes. ⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀ Post surgery Nolan’s heart function is down and we started 2 new heart failure medications this past week in the hospital. One he takes 2 times a day and the other he takes 3 times a day. ⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀ 10 syringes, 6 different medications, 10 times a day. He hates them all, and I don’t blame him. ⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀ I am thankful fo

Two Weeks Post Op

Two weeks. 14 days. I can’t believe you are already two whole weeks out of surgery. The lead up to surgery was so slow but time is flying post op. I love seeing how much energy you have and things that used to be hard for you are now easy. I love knowing that your heart rate and breathing rates are within a normal range and not equivalent to being on a treadmill 24/7. I love seeing your increased energy, happiness, movement, and smiles. Soon weeks will turn into months but I

Surgery Day

Today is the day. Please pray for strength for Nolan, calm for us, and the skill of his medical team. Thank you all for your support. ♥️ #nolanrandallmoore